Curated links to the world's leading Parkinson's disease organizations, support networks, and centers of clinical excellence — verified for accuracy, kept current, and free from commercial influence.
The largest Parkinson's disease organization in the United States. Funds research, operates a national helpline (1-800-4PD-INFO), publishes clinical practice guidelines, and supports a network of Centers of Excellence worldwide. Their Moving Day events and PD Health@Home programs serve thousands annually.
The world's largest private funder of Parkinson's disease research. Has invested over $2 billion in research since 2000. Home to the Parkinson's Progression Markers Initiative (PPMI), the largest observational Parkinson's study ever undertaken, which has transformed biomarker discovery in the field.
Focused on helping people with Parkinson's live well today. Founded by cyclist Davis Phinney, himself living with PD. Known for the Every Victory Counts manual — a comprehensive patient guide — and for promoting exercise, wellness, and quality of life alongside traditional clinical care. Particularly strong resources for younger-onset PD.
One of the oldest Parkinson's organizations in the US (founded 1961). Operates information and referral centers across the country, funds research fellowships, and maintains an extensive library of patient education materials. Known for grassroots community support and accessible resources for newly diagnosed patients and their families.
The UK's leading Parkinson's charity, funding research and providing support to over 145,000 people living with PD in the United Kingdom. Operates a nurses' helpline, local support groups, and a research community that includes people with Parkinson's as active partners. Strong online community and condition guides.
The umbrella organization for national Parkinson's associations across Europe. Advocates at the EU level for improved access to care, funds pan-European awareness initiatives, and represents the patient voice in regulatory and research policy. Maintains country-specific resource guides and multilingual patient information.
Support groups provide something clinical care cannot: peer understanding, shared experience, and practical knowledge from people living with Parkinson's and those who care for them. The networks below maintain searchable directories to help you find groups near you or online.
Searchable directory of in-person and online support groups across the United States, maintained by the Parkinson's Foundation. Includes general PD groups, young-onset PD groups, caregiver groups, and specialty groups by symptom or interest area. Updated regularly by regional coordinators.
Moderated online forums and virtual support groups for PD patients and caregivers worldwide. Includes disease-stage-specific groups, caregiver-only spaces, and topic communities (exercise, diet, DBS, young-onset). One of the largest and most active PD online communities, with thousands of members.
Free virtual group voice therapy sessions for people who have completed SPEAK OUT! therapy. The LOUD Crowd meets multiple times weekly and has been shown in research to maintain voice therapy gains over time. Available to patients nationwide. Referrals accepted from speech-language pathologists and neurologists.
The APDA runs dedicated caregiver support groups and educational webinars focused on burnout prevention, care strategies, and navigating the healthcare system. Separate from patient groups, these sessions provide caregivers a space to share without worrying about the person they care for.
A peer-led network specifically for people diagnosed with Parkinson's before age 50 — and their families. Addresses the distinct challenges of young-onset PD: career impact, parenting, financial planning, and the often faster progression of motor symptoms. Connects members globally through virtual events and a private online community.
Centers of Excellence designated by the Parkinson's Foundation have been independently evaluated and meet rigorous standards for multidisciplinary care, clinical volume, and research activity. Each center provides access to movement disorder specialists, specialized nursing, and the full spectrum of Parkinson's treatments including DBS, infusion therapies, and clinical trial enrollment.
One of the largest movement disorder programs in the United States. Designated Parkinson's Foundation Center of Excellence. Strong clinical research program including advanced DBS trials, biomarker studies, and non-motor symptom initiatives. Offers multidisciplinary clinics integrating neurology, psychiatry, speech, and physical therapy.
Mayo Clinic's movement disorder program spans three campuses (Minnesota, Arizona, Florida). Designated Center of Excellence; among the top-ranked neurology programs in the USA. Particular expertise in rare parkinsonisms, DBS selection and programming, and integrated care for complex cases. Accepts national and international referrals.
A world leader in Parkinson's disease research and clinical innovation. Home to the Memory and Aging Center and the Movement Disorders and Neuromodulation Center. Conducts trials in gene therapy, alpha-synuclein targeted treatments, and focused ultrasound. Strong fellowship training program and telemedicine outreach for remote patients.
Designated Parkinson's Foundation Center of Excellence. Offers comprehensive care including advanced therapies (DBS, levodopa/carbidopa intestinal gel infusion). Research programs focus on biomarker development, wearable technology, and digital health for PD monitoring. Known for patient education programs and peer support integration.
The Cleveland Clinic's movement disorder program is consistently ranked among the top neurology programs nationally. Features one of the highest-volume DBS programs in the country and extensive multidisciplinary care including dedicated PD physical therapy, speech pathology, and neuropsychology. Active clinical trial portfolio.
Home to the Parkinson's Foundation Center of Excellence and the Taub Institute. Strong focus on genetics research (LRRK2, GBA variants), epidemiology, and disparities in PD care. Multilingual clinical staff and community outreach programs serving New York City's diverse populations. Academic referral center for complex cases.
MGH's movement disorders program is part of one of the most research-active neurology departments in the world. Offers full spectrum of medical and surgical PD management, with particular depth in neuroimaging and biomarker research. Affiliated with Harvard Medical School and regularly enrolling patients in NIH-funded trials.
Home of the CTCC (Clinical Trials Coordination Center) for the Parkinson Study Group — the most important cooperative Parkinson's research network in North America. The URMC movement disorders program has been at the center of landmark PD clinical trials for decades. Strong emphasis on patient-centered outcomes and quality of life research.
ParkinsonLife maintains this directory through community contributions. If you know of a support group, organization, or center that serves the Parkinson's community and is not listed here, we welcome your submission. All submissions are reviewed before listing.